Privacy Policy

Last updated: February 2025

Introduction

The Ovarian Cancer Research Alliance ("OCRA," "we," "us," or "our") is committed to protecting your privacy. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website ocrahope.org and use our services, including the Community Accelerated Research Exchange (CARE), Living Lab, Discovery Lab, and Research Pulse platforms.

Information We Collect

Information You Provide

  • Living Lab Registration: Name, email, date of birth, diagnosis information, treatment history, and health-related surveys
  • Newsletter Subscription: Email address and communication preferences
  • Donations: Name, contact information, and payment details (processed securely by third-party payment processors)
  • Contact Forms: Name, email, and message content

Information Collected Automatically

  • Device information (browser type, operating system)
  • Usage data (pages visited, time spent, referring URLs)
  • IP address and approximate geographic location
  • Cookies and similar tracking technologies

How We Use Your Information

  • To operate and improve our services and platforms
  • To conduct and support ovarian cancer research
  • To communicate with you about research updates and news
  • To process donations and provide tax receipts
  • To analyze website usage and improve user experience
  • To comply with legal obligations

Data Security

We implement industry-standard security measures to protect your information:

  • All data is encrypted in transit (TLS/SSL) and at rest
  • Access to personal data is restricted to authorized personnel
  • Regular security audits and vulnerability assessments
  • Living Lab data is de-identified before sharing with research partners

Data Sharing

We do not sell your personal information. We may share information with:

  • Approved research partners (de-identified data only, after Governance Committee approval)
  • Service providers who assist in our operations (under strict confidentiality agreements)
  • Legal authorities when required by law

Your Rights

Depending on your location, you may have the right to:

  • Access your personal data
  • Correct inaccurate information
  • Request deletion of your data
  • Opt out of marketing communications
  • Withdraw from research participation at any time

To exercise these rights, contact us at LivingLab@ocrahope.org.

Cookies

We use cookies and similar technologies to enhance your experience. You can manage cookie preferences through your browser settings. Essential cookies required for site functionality cannot be disabled.

Children's Privacy

Our services are not intended for individuals under 18 years of age. We do not knowingly collect personal information from children.

Changes to This Policy

We may update this Privacy Policy periodically. We will notify you of significant changes by posting the new policy on this page with an updated revision date.

Contact Us

If you have questions about this Privacy Policy or our data practices:

Email: LivingLab@ocrahope.org
Website: ocrahope.org/contact