Who is eligible to join the Living Lab?

US residents aged 18 or older (19 in Nebraska) with a diagnosis of ovarian, fallopian tube, peritoneal, endometrial, or uterine cancer, including recognized subtypes and sarcomas.

Is there any cost to participate?

No. Living Lab membership is free. Participation does not affect health insurance, and data is encrypted and de-identified before being shared with approved researchers.

Can I withdraw from the registry?

Yes. You can withdraw from the Living Lab at any time through your MyDataHelps account. Previously contributed de-identified data may remain in aggregated analyses per the informed consent.

What data does the Living Lab collect?

The registry collects patient-reported outcomes, quality-of-life measures, treatment experiences, financial impact, and, with consent, de-identified electronic health record data.

Living Lab

Patient FAQ

If your question is not here, please reach out—our team is always happy to help. Contact us at LivingLab@ocrahope.org.

Participation Details

Who is eligible to enroll?

Can I join if I'm in remission or finished with treatment?

How long does it take to enroll?

What am I expected to do as a Living Lab participant?

Do I need to provide blood or other samples?

Privacy, Confidentiality & Data Use

How is my data protected?

Who can access my information?

How will my data be used for research?

Withdrawing From the Living Lab

Can I withdraw from the Living Lab after enrolling?

What happens to my data if I withdraw?

Receiving Results & Research Updates

Will participating in the Living Lab affect my medical care?

How can I stay informed about Living Lab activities?

Impact on Care, Insurance, & Costs

Will participating affect my current or future health insurance?

Will the Living Lab contact my doctors, or change my care?

Is there a cost to join? Will I be paid?

Sharing & Accessing Results

Can I access my own data?

Can my doctor or care team receive my Living Lab information?

Get in Touch

What if I have other questions or need extra help?