- Where do data in the Discovery Lab come from?
- The Discovery Lab includes Living Lab data contributed by registry participants, research datasets from scientists worldwide, global health data from public repositories, cancer registries, and biospecimen data from collaborative studies.
- What types of data are in the Discovery Lab?
- The Discovery Lab accepts any type of data, including: electronic medical records, patient-reported outcomes — surveys detailing symptoms, treatments, wellness, and survivorship, genetic & biomarker data — sequencing, variant calls, expression profiles, biospecimen resources, imaging (histologic and radiologic) and spatial multi-omics.
- How often is the data updated?
- Registry data is updated regularly as new participants join and provide follow-up information. External datasets are refreshed according to their source schedules. Significant updates and addition of new data sources will be announced in the Research Pulse.
- How can I access the data?
- Data is provided to researchers by request within the Trusted Research Environment (powered by Cirro). Data formatting depends on how the data was shared into the Discovery Lab and what is needed for the specific research question.