Living Lab - OCRA Patient Registry for Ovarian Cancer Research
A Collaborative Movement
Living Lab
Every experience matters. Every data point moves us closer to better outcomes. Help accelerate discovery by sharing your experience and clinical information with researchers worldwide.
The Living Lab is a first-of-its-kind national patient registry dedicated to improving prevention, diagnosis, and treatment of ovarian and uterine cancer. Designed to accelerate discovery, this secure platform measures clinical experiences, wellbeing, and financial impacts—information often missing from traditional research studies.
Eligibility Requirements
- Diagnosis of ovarian, fallopian tube, peritoneal, endometrial and/or uterine cancers. A full list of diagnoses can be found here✕Ovarian/fallopian tube/peritoneal cancerIncluding: high grade serous, high grade endometrioid, clear cell, mucinous, low-grade serous, carcinosarcoma, other invasive epithelial cancers (e.g., Brenner), germ cell and sex cord stromal tumors (granulosa cell and Sertoli Leydig)
Uterine/Endometrial CancerEndometrial cancerIncluding: endometrioid, serous, clear cell, Mullerian (MMMT), undifferentiated/dedifferentiated cancers
Uterine sarcomaIncluding: endometrial stromal sarcoma, adenosarcoma, uterine leiomyosarcoma, undifferentiated uterine sarcoma, perivascular cell tumor, inflammatory myofibroblastic tumor. - Are 18 years or older (19 or older if you live in Nebraska)
- Living within the United States
Participants
- Receive summaries of electronic health data
- Have access to a symptom tracker
- Help meaningfully improve lives
Support for the Living Lab provided in part by
